RareShare is a unique social hub building communities for patients, families, and healthcare professionals affected by rare disorders.
While rare disorders seem to impact only a small portion of the population, together they affect over 30 million people in the United States and Europe. Due to the comparably low level of occurrences of individual rare disorders, there is often a lack of information and support for patients and their families. We're working to change this.
It's free and easy to join RareShare. Here are just a few of the reasons to sign up for an account:
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It’s free and easy to join RareShare. Click here to signup for an account.
Andersen Tawil Syndrome
about 2 hours ago
Tubular Aggregate Myopathy
about 4 hours ago
Paraneoplastic Cerebellar Degeneration
about 20 hours ago
Alpha-1 Antitrypsin Deficiency
1 day ago
Complex Regional Pain Syndrome
1 day ago
Have questions about RareShare?
Visit our Frequently Asked Questions page to find the answers to some of the most commonly asked questions.