22q is a non-profit organization that was founded by parents in an effort to bring awareness and support for this virtually unknown condition. The organization is built on the belief that, although there may be no cure for the deletion, through identification, appropriate treatment, research and education there can be, in fact, a better quality of life for those living with this condition and their families.

22q11 Ireland provides help and support for individuals and families affected by 22q11.2 deletion, DiGeorge Syndrome, and V.C.F.S. Through education, research, outreach and advocacy 22q11 Ireland seeks to raise awareness of this little known condition.

The Velo-Cardio-Facial Syndrome (VCFS) Educational Foundation is an international not-for-profit organization dedicated to providing support and information to individuals who are affected by Velo-Cardio-Facial syndrome, their families, physicians and other practitioners. The Foundation is independent of — and not affiliated with — any particular institution.