daily variations - Dandy-Walker Syndrome Forum - Rareshare.org - Connecting Those Affected by Rare Disorders

daily variations - Dandy-Walker Syndrome Forum

User	Message
kmatokov Posted 4 months ago	question is: is normal to see, child has fiew day when all sems to be relative normal, and another 2-3 day when it can not walk trougt obstacles, drops on clear ground, speak is not so unersteandible. in tehnical speak we can say like empty battery…. is posible to say that can be chemical (or what) variation which can be treated and healed ? …fix the good days. for me the variation is hope for beter (no?) sory for my bad english, i’hope was understeadible ;-) dad

User

Message

Posted 4 months ago

question is: is normal to see, child has fiew day when all sems to be relative normal, and another 2-3 day when it can not walk trougt obstacles, drops on clear ground, speak is not so unersteandible.
in tehnical speak we can say like empty battery….
is posible to say that can be chemical (or what) variation which can be treated and healed ? …fix the good days.
for me the variation is hope for beter (no?)

sory for my bad english, i’hope was understeadible ;-)

dad

Become a Member

It’s free and easy to join RareShare. Click here to signup for an account.

Featured Community

Beta-sarcoglycanopathy

FAQ

Have questions about RareShare?

Visit our Frequently Asked Questions page to find the answers to some of the most commonly asked questions.

Dandy-Walker Syndrome