Community Resources

Name Description
Degos Patients’ Support Network

This website has been devised by Judith Calder, a Degos patient in Sussex, England, with the full co-operation and support of Professor Christos Zouboulis, Director of the Departments of Dermatology and Immunology, Dessau Medical Centre, Germany.

There is information and space for patients, their carers and relatives, their doctors and researchers.


Become a Member

It’s free and easy to join RareShare. Click here to signup for an account.

Bladder Exstrophy

Recently Updated Communities

Narcolepsy
about 4 hours ago

Systemic Capillary Leak Syndrome
about 6 hours ago

Antisynthetase Syndrome
about 11 hours ago

Dent's Disease
about 13 hours ago

12q Chromosome Deletion
about 14 hours ago

FAQ

Have questions about RareShare?

Visit our Frequently Asked Questions page to find the answers to some of the most commonly asked questions.