Paraneoplastic Cerebellar Degeneration Details

Expanded Description

Paraneoplastic cerebellar degeneration is believed to be the body’s immune system’s attempt to destroy a tumor resulting in damage to the cerebellum.

Prevalence

No prevalence information has been added yet.

Causes

No causes have been added yet.

Disorder Symptoms

My experience with the symptoms include: feet feel asleep 100% of the time; appetite changed; taste sensation changed; balance severely diminished; ataxia; myoclonic jerks; lethargy, weakness, &/or fatigue; diminished memory & logical capacity.

We don't have any symptoms yet.

Diagnosis

No diagnosis information has been added yet.

Diagnostic Tests

No diagnostic test information has been added yet.

We don't have any tests yet.

Disorder Treatments

I responded very well to intravenous dosages of methylprednisolone (1 gram at a time)… started off daily for 5, then weekly, then bi-weekly, and now monthly. When I was taken off, in hopes that my CellCept rx would do the trick, I had a total & complete relapse. Now am back on steroid & symptom-free except for the asleep feet.
Dr Sean Pittock at the Mayo Clinic (Rochester) is principally treating me, but I must give kudos to my local internist (Dr EC O’Bryan) and neurologist (Dr Michael Hodge) for a very early suspicion & diagnosis.

We don't have any treatments yet.

Prognosis

Will be taking steroids long-term. No longevity effect anticipated.

Tips for Living with the Disorder

We don't have any tips yet.