Community Resources

Name Description
Foundation for Sarcoidosis Research

The Foundation for Sarcoidosis Research (FSR) is the nation’s leading nonprofit organization dedicated to improving care for sarcoidosis patients and to finding a cure for this disease.

The Sarcoidosis Center

The Sarcoidosis Center is a non-profit corporation designed to provide information for patients and physicians regarding sarcoidosis.

The Dorothy P. & Richard P. Simmons Center for Interstitial Lung Diseases

Founded in 2001 thanks to the generosity of the Simmons family, the Dorothy P. & Richard P. Simmons Center for Interstitial Lung Disease is designed to provide patient-friendly advice and support for people with Idiopathic Pulmonary Fibrosis (IPF).

Sarcoidosis Australia

The symptoms and signs that patients have with Sarcoidosis and Lyme are rarely recognised by most GP’s and specialists, as constituting a discrete systemic illness.

Many symptoms associated with these systemic diseases are not seen as a whole constellation of problems resulting from the diseases themselves, but as separate and unrelated conditions which can include but not limited to: fibromyalgia, bursitis, arthritis, facial palsy (drooping and/or paralysis of the muscles on one side of your face), headaches, tinnitus, restless leg syndrome, uveitis, eye pain, blurry or double vision, blindness, weakness, numbness, tingling and/or pain in the face, arm and/or leg paralysis, muscle fatigue, seizures, behavior and mood changes, irritability, memory loss and hallucinations. Neurosarcoidosis can even include: nerve inflammation and damage, peripheral neuropathy, masses of granulomas in the meninges (or more rarely in the brain) that can lead to meningitis, hydrocephalus and neuroendocrine disorders and even coma etc just to name a few.


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