| Name | Description |
|---|---|
| Sneddon's Foundation | The Sneddon’s Foundation of the U.S. was formed in May 2008: 1. To develop a clearinghouse of information on Sneddon’s Syndrome in two formats, one for the medical community and one for the community of patients, families, and the general public, and todisseminate both sorts of information through every possible means; 2. To develop a nexus of commmunication about Sneddon’s Syndrome within the patient community, within the medical community and across the divide between the two; and 3. To encourage and support research on Sneddon’s Syndrome in hopes of clarifying both a cause and a cure for this devastating disease. |
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