Community Resources

Name Description
Sneddon's Foundation

The Sneddon’s Foundation of the U.S. was formed in May 2008:

1. To develop a clearinghouse of information on Sneddon’s Syndrome in two formats, one for the medical community and one for the community of patients, families, and the general public, and todisseminate both sorts of information through every possible means;

2. To develop a nexus of commmunication about Sneddon’s Syndrome within the patient community, within the medical community and across the divide between the two; and

3. To encourage and support research on Sneddon’s Syndrome in hopes of clarifying both a cause and a cure for this devastating disease.


Become a Member

It’s free and easy to join RareShare. Click here to signup for an account.

Central Diabetes Insipidus

Recently Updated Communities

Systemic Capillary Leak Syndrome
about 2 hours ago

Pentalogy of Cantrell
4 days ago

Congenital Dyserythropoietic Anemia
6 days ago

Syringomyelia
6 days ago

Large Granular Lymphocytic Leukemia
6 days ago

FAQ

Have questions about RareShare?

Visit our Frequently Asked Questions page to find the answers to some of the most commonly asked questions.