Systemic Capillary Leak Syndrome Community

Community Statistics

Discussion Topics: 182
Community Members: 169

Brief Description

Systemic Capillary Leak Syndrome (SCLS) is an exceedingly rare, life- and limb-threatening disorder characterized by acute and severe recurrent attacks featuring a rapid fall in blood pressure due to the temporary leak of plasma out of the blood circulatory system.

This virtual community is dedicated to the memory of Judith (Judy) Lynne Davis (1958-2009), one of its founding members and a victim of a very severe episode of SCLS that took her life in November 2009.

We also mourn the death of two other SCLS patient members of this community: Mario Gatto (mariogatto) from Naples, Italy, who passed away in December of 2009; and Denise Weston (mdweston), from Ohio, USA, who died in March of 2011.

Community Expert

The following user is the expert in this community:

Arturo C. Porzecanski

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Synonyms

SCLS, Idiopathic Systemic Capillary Leak Syndrome, Clarkson's Disease, Clarkson's Syndrome.

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Community Members

1. 

   monika_mathur

   

   sinicolaj

   

   lisamccoleman

   

   Maria

   

   erintaylor

2. 

   jdcht67

   

   grantspeelman

   

   markandcara

   

   maggiedog

   

   dfye

3. 

   greipp

   

   leolove

   

   claude53

   

   custom

   

   josee

4. 

   MysteryDiagnosis

   

   maryjane

   

   allenoverland

   

   aporzeca

   

   jisenhour