Checking in with everyone - Systemic Capillary Leak Syndrome Forum

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judithdavis3


Posted about 1 month ago

I am wondering how everyone is doing. If anyone would like to just briefly give an update it would be appreciated. I am particularly wondering about Ireland, Mineapolis, Canada, India, DC and now Switzerland is added. I have heard from Idaho but an update on rare share might be good. I am still on prednisone for a new autoimmune diagnosis and my SCLS is doing well. A few mild attacks only the past few weeks. I am weaning off steroids for another 5 weeks.

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nwbsaw


Posted about 1 month ago

This is Wendy in Burley. My husband is doing better than he has done for a while. He still has mild attacks every five days. His last couple were a little more severe but he didn’t have to be hospitalized. He is on Thalomid. He had a bone marrow biopsy to test for myomelomia. It was negative. We just keep going from day to day. We wish all of you the best.


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