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News
RareShare Wins Pace University Pitch Competition
12/05/2008
RareShare Launches Early Beta Social Networking Platform for Rare Medical Disorders
06/10/2008
RareShare Announces New Social Hub for Rare Medical Disorders
03/03/2008
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EU and US unite against rare diseases
07/01/2009 More than 50 million people in the EU and US alone suffer from rare diseases. The reluctance of drug manufacturers to commit R&D spend on these areas because of the low level of return, coupled with intense lobbying efforts of patient groups, has caused many regulatory agencies to introduce initiatives that have incentivized rare disease R&D. |
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Sharing The Pain
02/10/2009 Rare Disease Puts an AU Economist in Touch With Fellow Patients Around the World... |
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Más allá de Facebook y MySpace
01/30/2009 Aunque las redes sociales más populares tienen más de cien millones de usuarios, hay muchos navegantes que prefieren servicios de este tipo orientados a temáticas específicas, como las mascotas, los deportes o el café... |
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20 Best Health 2.0 Tools for Physicians and Patients
01/21/2009 The premise of Health 2.0 rests on one simple idea: whatever your healthcare question or concern may be, there is a potential community of likeminded individuals out there who also have similar questions and are ready and willing to share information, opinions, and support. |
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Rare disorders bring people together via the Web
12/26/2008 For conditions you think even your doctor doesn't know about, check out RareShare. The medical community connects people with rare conditions. The results — for Web traffic, at least — are impressive... |
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RareShare - A New Site Connecting Those Affected by Rare Medical Disorders
11/18/2008 RareShare — http://www.RareShare.org — is a new online network dedicated to connecting patients, families and healthcare professionals affected by rare medical disorders. The Site, which entered beta in July, offers free membership to the public. While membership is not necessary to view the site, it is required in order to contribute information and to engage with other members. Those who decide to become members can be assured that their information will be kept confidential. |
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Recognizing Rare Disease Day 2010
02/28/2010 Today is Rare Disease Day, an annual event that raises awareness about rare diseases at a national and global level. As part of Nutra Pharma’s ongoing effort to help raise awareness about rare diseases, we would like to take the opportunity to share with you a couple important organizations that are making great strides in rare disease collaboration and outreach. |
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Patients 2.0 : 12 Patients social networks and social portals !
02/12/2010 As there are many doctors social networks there are also patients social networks, most of them are created for the same aim to connect people with similar conditions, but some of them are created for different goal, category and clients. Patient 1.0 was the web user who is looking for simple reliable information for his condition, symptoms, medication and complication, but Patient 2.0 now has more features than before to connect with specialists, ask them as well as connect and share with other patients and learn from their experience. |
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Rare Disease? Want to Find Fellow Sufferers?
02/11/2009 Suppose you found out you had a deadly disease, and no one you knew even knew anyone else who had it? Even your doctor had never treated it before? And no one could provide you with ideas that would really work to treat it? |
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RareShare.org: Social networking for the uncommon disorder
12/29/2008 RareShare.org, a social networking site for individuals with rare medical conditions, is reporting 35% to 50% growth every month since its July 2008 launch... |
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Entrepreneur Brings Social Networking To Rare Diseases
12/26/2008 David Isserman got the idea for RareShare while working recently for the biotech company, Nutra Pharma. Patients with the rare disease Adrenomyeloneuropathy would write and ask him how they could meet other people with the same illness. There were few suggestions he could offer – and no spot, online or off, efficiently able to bring this geographically disperse group of people together... |
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RareShare: A Community For People With Rare Medical Problems
12/23/2008 Rareshare, a community site for people with rare medical conditions, has shared some of it most recent growth data with us and the results are impressive... |
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