About Us
News
RareShare Launches Early Beta Social Networking Platform for Rare Medical Disorders
06/10/2008
RareShare Announces New Social Hub for Rare Medical Disorders
03/03/2008
|
RareShare - A New Site Connecting Those Affected by Rare Medical Disorders
11/18/2008 RareShare — http://www.RareShare.org — is a new online network dedicated to connecting patients, families and healthcare professionals affected by rare medical disorders. The Site, which entered beta in July, offers free membership to the public. While membership is not necessary to view the site, it is required in order to contribute information and to engage with other members. Those who decide to become members can be assured that their information will be kept confidential. |
|
RareShare social network builds an uncommon community
10/02/2008 Even its proprietor says it's not a good thing when you have to join the RareShare social network, but for those suffering ultra-obscure diseases and disorders, it's a powerful resource. |
|
Finding healthy support in the online world
08/15/2008 For the first six weeks, she lurked on the perimeter. Watching. And reading. She learned that flaxseed oil might help with her mood swings. And that zinc supplements could slow the rate of hair loss caused by some of the medications used to treat bipolar disorders. But more than anything, Joan Barnidge saw an opportunity for understanding. |
|
For people with rare ailments, a way to connect
07/03/2008 Oshawa pharmacist Rajni Kassett is sending a few of his customers, struggling with relatively rare diseases, to a new website. He's telling them they just might find the help and support there they sometimes feel they're missing... |
|
St. Louis Business Journal Shop Talk
06/13/2008 At RareShare, a startup that is providing Internet-based social communities for people with rare medical disorders... |
|
KSDK Website of the Day
06/06/2008 Website of the day on June 6, 2008, for KSDK NewsChannel 5 in St. Louis, Missouri... |
|
Niche groups can benefit from online communities
07/10/2008 I wrote last week about how one of the benefits of social networks is that they can help people with particular interests or issues to find each other. It’s easier to network with people and share experiences with those who have similar interests of experiences to you, however niche... |
|
RareShare.org - Connecting Patients of Rare Diseases
07/10/2008 There are plenty of sites out there devoted to those patients who suffer heart disease, cancer, and diabetes, but if you’re afflicted by a less common disorder, you may not be able to enjoy the same amount of web resources. However, a new site, RareShare, aims to connect patients, friends, and families affected by rare diseases... |
|
New Social Networking Website for Rare Medical Disorders
07/07/2008 Congratulations to David Isserman for launching RareShare, a social enterprise website for patients and families affected by rare medical disorders... |
|
Rareshare: Social Network for Those With Rare Medical Disorders
07/07/2008 Rareshare is a social network for people coping with rare diseases like adrenomyeloneuropathy or erythromelalgia. Rareshare was created by David Isserman... |
|
A Social Network I Wish Didn’t Have to Exist
06/10/2008 It’s a universal fear: you or a loved one gets diagnosed with a rare disease. After the dust settles, one of the first things many people do is hit the Web to begin research... |
|
RareShare.org: A Social Hub for Rare Disorders
02/25/2008 Boulder, Colorado based RareShare.org is a new initiative that aims to connect those who share the same rare disorders. Each community... |
Become a Member
It’s free and easy to join RareShare. Click here to signup for an account.
Featured Community
Recently Updated Communities
Ehlers-Danlos Syndrome, Classic Type
about 9 hours ago
Frontotemporal Dementia
about 10 hours ago
Gyrate Atrophy
about 12 hours ago
Chromosome 4q Deletion Syndrome
1 day ago
Adrenomyeloneuropathy
1 day ago
FAQ
Have questions about RareShare?
Visit our Frequently Asked Questions page to find the answers to some of the most commonly asked questions.