Blogs

You must be logged in to do that. Please login or register

Previous 1 2 Next

	Recognizing Rare Disease Day 2010 02/28/2010 Today is Rare Disease Day, an annual event that raises awareness about rare diseases at a national and global level. As part of Nutra Pharma’s ongoing effort to help raise awareness about rare diseases, we would like to take the opportunity to share with you a couple important organizations that are making great strides in rare disease collaboration and outreach.
	Patients 2.0 : 12 Patients social networks and social portals ! 02/12/2010 As there are many doctors social networks there are also patients social networks, most of them are created for the same aim to connect people with similar conditions, but some of them are created for different goal, category and clients. Patient 1.0 was the web user who is looking for simple reliable information for his condition, symptoms, medication and complication, but Patient 2.0 now has more features than before to connect with specialists, ask them as well as connect and share with other patients and learn from their experience.
	Rare Disease? Want to Find Fellow Sufferers? 02/11/2009 Suppose you found out you had a deadly disease, and no one you knew even knew anyone else who had it? Even your doctor had never treated it before? And no one could provide you with ideas that would really work to treat it?
	RareShare.org: Social networking for the uncommon disorder 12/29/2008 RareShare.org, a social networking site for individuals with rare medical conditions, is reporting 35% to 50% growth every month since its July 2008 launch...
	Entrepreneur Brings Social Networking To Rare Diseases 12/26/2008 David Isserman got the idea for RareShare while working recently for the biotech company, Nutra Pharma. Patients with the rare disease Adrenomyeloneuropathy would write and ask him how they could meet other people with the same illness. There were few suggestions he could offer – and no spot, online or off, efficiently able to bring this geographically disperse group of people together...
	RareShare: A Community For People With Rare Medical Problems 12/23/2008 Rareshare, a community site for people with rare medical conditions, has shared some of it most recent growth data with us and the results are impressive...
	Winners for Pace Pitch Contest Announced 12/05/2008 Yesterday the finals of the Pace University Pitch Contest were held in Manhattan. The contest featured a social venture track and a new business concept track. Here is a little bit about the winners RareShare.org and OpenOtto:
	Niche groups can benefit from online communities 07/10/2008 I wrote last week about how one of the benefits of social networks is that they can help people with particular interests or issues to find each other. It’s easier to network with people and share experiences with those who have similar interests of experiences to you, however niche...
	RareShare.org - Connecting Patients of Rare Diseases 07/10/2008 There are plenty of sites out there devoted to those patients who suffer heart disease, cancer, and diabetes, but if you’re afflicted by a less common disorder, you may not be able to enjoy the same amount of web resources. However, a new site, RareShare, aims to connect patients, friends, and families affected by rare diseases...
	New Social Networking Website for Rare Medical Disorders 07/07/2008 Congratulations to David Isserman for launching RareShare, a social enterprise website for patients and families affected by rare medical disorders...