I see there are three of us here now. Thanks for letting us know about this site Suitechic! It's another way for us to get the word out, and share our knowledge! Hopefully we will meet even more people through this site, and be able to help others as well. Hugs, Gracie

Hi Gracie and everyone else. Thanks for joining me so I wasn't a loner in this group. :) I thought it would be nice to have a group here when I saw it and thought that we can help others learn about this illness. If anyone wants to add anything, I think that would be really cool.. to give more information about this disease. Welcome everyone!

Hey, ladies, I just joined and updated some of the info that was there. I'm not sure if they don't like what I said about the diagnostic tests or if they are waiting on approval....hmmmmmm...