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Greetings and salutations

dgimple1 Message
9 Dec 2010, 08:23 PM

Found this site recently and wasn't sure how often it saw traffic. My nine year old son was diagnosed with Addison's disease about seven months ago and we've been trying to get our hands around it. Normally, a daily dose of cortisone will help to regulate everything but his body is not absorbing the medication. We've moved on to prednazone but it didn't work as well as we would think. Still running additional tests.
lfedeli0420 Message
13 Dec 2010, 02:59 PM

Hi dgimple1, As far as I can tell, this site doesn't get a whole lot of traffic. Little traffic for those with Addison's any how. I'm sorry to hear your son was diagnosed and only 9 years old. I was diagnosed at age 13 with Addison's and I know how frustrating and scary it can be as a child when diagnosed with something no one really knows a whole lot about. Anyhow, I'm now a parent and can understand both the parent's side of dealing with a child diagnosed and the child's point of view. If you ever want to chat or ask questions, let me know. I've delt with Addison's for 22 yrs now and have had complications crop up through out the years. Good luck to you and your family. I hope doctor's are able to find a medication your son's body will absorb. Take Care, Leah Fedeli
dgimple1 Message
13 Dec 2010, 03:06 PM

Thanks for the heads up. All the posts on this site seem pretty old, but it's a good idea. I updated some of the information on the basics of Addison's. Our biggest concern right now is finding a doctor that has experience with children with Addisons. we've met with three doctors here in town (Columbus, Ohio) and plan on heading down to Cincinnati to meet with the pediatric endocrinology department. Glad to hear it's manageable. We just need to get things locked down from a medication standpoint and hopefully move forward.