Muckle-Wells Syndrome Community

Community Statistics

Discussion Topics: 21
Community Members: 76

Brief Description

Muckle-Wells Syndrome is a rare disorder characterized by progressive hearing loss.

Community Expert

This community has no expert yet.

Synonyms

MWS, Urticaria-Deafness-Amyloidosis, Urticaria Deafness Amyloidosis, UDA, Cryopyrin-Associated Periodic Syndromes, Cryopyrin Associated Periodic Syndromes, CAPS, Muckle Wells Syndrome

Learn More About this Disorder

Discussion Forum

Title Created by Last updated
Possible MWS blmielke 3 months ago
3 yr. old son griffin 11 months ago
side effects of meds?? vstefans about 1 year ago
At what point should you start treatment? chall about 1 year ago
Blood donation, bone marrow donation and organ donation? Sazzy6 about 1 year ago

You have to join this community to be able to post messages on its forum or update its information.

Community Members

  1. Photo_00022

    tarah

    Tonya

    Tonya33

    No-profilepic

    thressa5

    No-profilepic

    creichman

    No-profilepic

    slkeat

  2. No-profilepic

    michanussbaum

    Photo-10

    stopcaidnow

    No-profilepic

    Mitch

    No-profilepic

    jenpitt15

    No-profilepic

    griffin

  3. No-profilepic

    CheyneSimons

    Awomansworldavatar

    vstefans

    No-profilepic

    Allin

    No-profilepic

    ronc

    Skye_zebra_red_name

    arudd

  4. No-profilepic

    nickitoys

    No-profilepic

    carew52

    No-profilepic

    mattsgirl

    No-profilepic

    jessistiles

    No-profilepic

    cleanergirl

Become a Member

It’s free and easy to join RareShare. Click here to signup for an account.

Superficial Siderosis

Recently Updated Communities

Systemic Capillary Leak Syndrome
2 days ago

Dent's Disease
2 days ago

Adrenomyeloneuropathy
3 days ago

Birt-Hogg-Dube Syndrome
8 days ago

Blastic Plasmacytoid Dendritic Cell Neoplasm
11 days ago

FAQ

Have questions about RareShare?

Visit our Frequently Asked Questions page to find the answers to some of the most commonly asked questions.